Support and information on specific conditions or issues

All the ECHO team are parents of a heart-child themselves.  They are all happy to talk to you about their own experiences, and we thought it would be helpful if we listed their “Specialist Subjects”, so that you can see who might be able to give you experienced support in any one area.

NICK DE NAEYER: 01992 534200 / chair@echo-evelina.org.uk
AVSD; Co-arctation of the Aorta; Twins; Cleft Palate; Paternal Perspective.

MARGARET ARNELL: 020 7237 1745 / Margaret.arnell@sky.com
Pulmonary Stenosis/VSD/RVOT’s, Feeding issues including Gastrostomy and NG tubes

JANE WARD: 0208 6550660 / jane_ward@marketforce.co.uk
Pre-natal diagnosis; co-arctation of the aorta

JO RAO: 020 8659 7326 / joannerao@hotmail.com
Prenatal diagnosis, AVSD, Fallots; DiGeorge sydrome

JO WILSON: 01932 864893 / director@echo-evelina.org.uk
Prenatal diagnosis; AVSD; Pulmonary Stenosis; Isomerism; Malrotated Bowel

JESSICA CATTERMOLE: 01273 248948 / admin@echo-evelina.org.uk
Transposition of the Great Arteries

BARBARA SQUIRES: 01689 829080 / j.squires@virgin.net
Hypoplastic Aorta; VSD; Stenotic Valve

FRANCES WINTOUR: 01322 864350 / fwintour@hotmail.com
Large VSD

SHELLEY RAWES: 01276 34080 / shelleyrawes@btinternet.com
Tetralogy of Fallot

SALEHA KABIR: sal@echo-evelina.org.uk
Fallots, truncus arteriosus and other outflow tract abnormalities (eg pulmonary atresia)

CATRIONA MOORE: 0207 2527534 / catrionamoore@hotmail.co.uk
AVSD; Feeding problems

GRANT TAYLOR: 0208 4408614 / Grant.Taylor@tmpw.co.uk
Prenatal Diagnosis; VSD; coarctation of the aorta, feeding issues including prolonged use of NG tube and gastrostomy; pacemaker

ALEX BICKNELL: 07712 654 607 / abicknell@bloomberg.net
“GUCH” patient; Mitral Valve Replacement & Tageuchi procedure

KERRY AUGER: 01702 559335 / kauger2604@aol.com
Hypoplastic Left Heart Syndrome